R.I.P Daddy/Papa

My daddy passed away on March 16. It was very unexpected and it happened very fast. He had a sudden heart attack, and was gone in that second. I just wanted to write something about him on here, for the kids to see. Their papa loved them so very much. It was very hard to explain to the kids what happened, and they still ask questions every day about him in heaven, they want to make sure he can still shower, eat, and plant a garden up there. We are now getting to spend even more time with Nana... She has been with him since she was 15 years old, so her life has changed more then anyones. Her grandchildren keep her going! My children keep me going... Life is so hard without him, but we do have wonderful memories that will last a lifetime...

I love you Daddy!

New pics

It's been a while!

Well, i know its been a while and I still dont have new pics of the kids downloaded on my new computer but...Here is the latest on them..

Hallie- just turned 4!! We are pretty successful in the potty training dept but we battle with constipation...so that is an issue with that! She weighs 27 lbs, and is 36 inches tall. She is doing so good....she has pretty much been healthy except for normal little kid things like a cold and ear infections. She still wears her glasses and we did find out this summer that she is over 3 times the legally blind limit in her bad eye, but thank goodness her other eye is pretty good.

Heath- My poor little boy!! In 2007 we were in the hospital somewhere around 8 times with Pneumonia and one time with RSV, that has really set him back with his lungs. He has been on oxygen the majority of the time at night since 2007. In 2008 he only was in the hospital twice but one time in May was really scary and we ended up having to call 911 and he was taken my ambulance to Childrens hospital. In 2009, we have already been in the hospital for Pneumonia and RSV... I hope 2009 gets better. Besides severe ashtma and hypoxia (lack of oxygen) he also is in need of another heart surgery, we have to wait on his lungs to get stronger before that is possible. All the Pneumonia is not helping this issue. His lungs are actually the cause of his new heart problem. Its a long scary story but he is a fighter and we will get through this hurdle too.
He is 39 inches tall and weighs 30 lbs. He hasnt gained weight in about 6 months or so. He eats but for some reason he just cant gain. He doesnt eat great but we supliment both kids with Nutren Jr (high calorie formula).

I will post pictures soon, even though I am not real sure if ANYONE checks this thing anymore....since it has been 1 1/2 years since I posted....

NEW PICS

First football game of the year!

Harley's first day of K, and the twins first day in the 2 year old class.


Heath's newest acheivment would be .... throwing a ball so hard that it shattered the glass in the stove, who even knew that glass would break.... Im glad he can throw good but dang...now we have to buy a new stove!!

NO MORE BUTTON

YAY for Hallie!!.... 2 weeks ago we went to Tiny Tots to check on Hallie's button that looked like it was getting an infection...and we chose to take it out!! It had an infection and she wasnt using it... but it was still a very hard decision...and Hallie has withdraws from it...She cried for her button..and told me to go back to the dr and get it.. But, now it has healed nicely and looks like another belly button! I am also very excited to report that Ms Hallie Brooke weighs 21 lbs... (more then Halle Grace!!) That was a huge gain for us!

Harley started K on Monday...He didnt cry at all and could care less when we left. But, it has totally wore him out. He cant even function when he gets home because he is just so tired. If you ask him about school, he talks about going outside to play... That's MY boy!

Heath and Hallie started a new class "The Two year old class"... They really like their new teachers but they cry in the mornings now when we drop them off. They have to wait in another room for about 15 mins for their teacher to get there and they do NOT like that room.

Thats about it in the Lovvorn house... sorry the pics are so old...Its been a while!

(There is my update Julie)

I'm pretty sure I have lost about all of my viewers to the blog, since it has been 3 months since I have last posted. Anyhow, the twins have been doing great. We have been hospital free since March. We are getting more and more teeth, throwing more and more tantrums, and talking more and more. Besides that, it has been a pretty eventless 3 months. Harley played soccer for the first time. It was fun watching him, but he already knows that the goalie doesnt have to run, so that is what he always wanted to be! That is MY son!! Heath and Hallie have realized that thunder "scare me" and that they LOVE the outdoors. Heath pretty much acts like we are beating him every time we put him in the car... Hallie tackles Heath on command, and Heath can NOT get her off of him...he screams bloody murder!!!, Hallie will take out her "hair bow" EVERY time she gets in the car...she now asks for her glasses..We found out 2 weeks ago that Heath has to wear glasses again... they should be in any day now... but he asks to wear Hallie's all the time, so I'm crossing my fingers that he will keep them on..., and Justin has already started Heath on pitching lessons since he is a lefty!! (To a baseball coach, left handed pitchers are gold...Poor Heath!)


Hallie's first day with 2 "Hair bows"


Does Heath not look like a "mini coach" or what!!??

Harley is really just pretending to listen.... I can only imagine how intense the pep talks are going to be in 10 years...
A tackle on command!!!

ICU.....and more!!

I just noticed it has been a month since I have updated...Oops! This has been one CRAZY month.. Heath has had 2 different hospitalizations! The first was rather scary..He was put into ICU for 24 hours, he was needing 5 liters of oxygen and they were talking about intubating him... We were SO scared!! Then we were out of the hospital for 2 week and had to go back in.... he had a minor surgery on Friday the 16th and during that he stopped breathing and had to be bagged 2 different times... well that night we ended up back in the hospital (the surgery was at an outpatient clinic) We stayed 3 more days in the hospital since he needed more oxygen then they would like for us to do at home....(we often do more then they think we should without taking him to the hospital). The Dr. told us anything over a liter was too dangerous for us to do at home...and there has been several occasions were he has needed 2 liters at home.. I did tell him we would end up living at the hospital if that was the case.

Harley and Hallie, thank God, have been relatively healthy through all of this...

I will try really hard to update more often...

Pray for April to be a month WITHOUT being in the hospital!! 

Heath is still sick...or shall i say sick again! Another double ear infection... more fever. Hallie is teething, so we have a fussy one there too... I wonder what its like to have healthy kids!!??
These pictures are SO Heath. He thinks if he has a "bogan" on his head then he can go outside, so he stood by the back door yelling "side"... He must have forgot he has to have clothes on too... and he always runs around with that football helmet on his head...and of course a football...and I must say he catches it great for his age/size. Daddy is so proud! 

DOLLS? We don't need no stink'n dolls!! 

 

Happy Birthday and Hospital Stay # 2

I am VERY pissed right now. I just spent the last 45 minutes writing this big story on our last month. Including Hospital stays and Birthday #2! Here is a very short version… I do mean VERY.


*Heath was in the hospital for 5 days at the beginning of Jan for RSV and Pneumonia.
*Hallie went to the Dr. when Heath got home from the hospital and has Pneumonia too.
*We are 2 weeks post hospital stay and Heath is STILL on oxygen at night.
*Heath STILL has Pneumonia, no better or worse. So we, yet again, try another antibiotic!
*Heath’s eardrum busted.
*Heath learned how to climb out of his baby bed.
*This week we see ENT, GI, Pulminologist, Pedi (Yes, we get Synagis. It just doesn’t work for us!), and we also have the yearly evaluation with ECI.


****Two very special kids turned TWO!! H & H turned two on January 18th. It really seems like it should be their first birthday. Our birthday wish was more weight, and less sickness for 2007!****

Someone at the Dr’s office asked their age difference.” Two minutes”. ”Oh, they’re twins, I couldn’t tell”. I’m sure I looked at her like she is crazy but they do weigh 17 and 24 lbs and are 5 inches apart.I guess I’m starting to look like one of those crazy moms that got pregnant right away.

Ambulance Ride and Oxygen

We have had one CRAZY week. Short run down, Hallie was sick all week ...Monday, the dr put her on antibiotics for a double ear infection and an RSV test came back negative. Tues and Wed I stayed home from work because she was still sick. Thursday,since we had to go to Dallas for 2 other dr's appt's, we took Heath and Hallie to the dr for being sick. Little did I know how sick Miss Hallie really was. While we were at the dr they ran another RSV test, gave 2 breathing treatments, and then hooked both up to the Pulse ox machine. I will admit I thought the Dr was crazy since that is what they were on when they came home from the hospital. I thought that I would be able to tell if Hallie couldnt breathe, well I was wrong.... You want your 02 sats in the high 90's atleast! Hallie was in the mid 80's. I made the excuse that the thing wasnt on her foot right.... well it still came back the same. I thought I knew what that meant but it was one of those feelings that I was hoping I was wrong.... Yes, she needed oxygen.... and Yes, we were heading to Childrens.... by ambulance. Once we were there, it was madness. Hallie was on oxygen and the breathing treatments were making her better. Justin comes in with Heath, the dr looks at him and decides that he needs to be admitted too.... Crazy! He was released a few hours later after meds and oxygen for a while. Now is when it gets bad.... In the middle of the night the dr's come in and tell us Hallie has been doing bad and they need to work on her (at children's the turn off the monitors in the room, so parents can sleep....Im not sure I like that) They turn on her monitors and begin deep suctioning her out.... I asked how much oxygen she was on, and at first it was 1 liter..... then 1 1/4, then 1.5, then 1 3/4, then 2.....(remind everyone, she came home from the NICU on 1/32nd of a liter, so I KNEW this wasnt good). At the point she was on 2 liters I asked them what was next because she wasnt getting better and nothing was working....They said "We are going to try suctioning really deep one more time and then Its the INTENSIVE CARE UNIT" I got so sick, literally. The head RT came in and FINALLY , FINALLY... got her a little better.... I was so scared because I knew that there were no meds that could help this....(I forgot to mention, yes they were treathing her for RSV) Besides, Heath's life and death heart surgery, that was the by far the most worried I had been about the babies....Long story.... but we are home now! Prayers, once again, were answered! Merry Christmas to All!
 

I have so much to be thankful for this year. My family of course being the most important. I am so thankful that the twins are relatively healthy, Hallie can see out of atleast one eye, Heath has so far not had to have another heart surgery, Harley is a great big brother, my wonderful husband that takes such great care of me, that I get to wake up 3x a night to feed my baby girl....yes, I'm thankful for that! She eats, she is growing, and she is HERE....im very thankful. I will also be thankful when she is big enough to sleep all night without having to eat. But, I do remember the days of constant praying that I would do ANYTHING for her to take a bottle, and I do suppose that meant not getting more then 3 hours a sleep at a time. I thank God everyday for my family and everything He has done for us. It has been a very hard road and I must say it has all been worth it. Preemie life is a rough road to travel and I wouldn't wish it upon my worst enemy but it has taught me a lot and I do believe I am a better person because of it. I have learned to have patience, dont stress over the small stuff. If a surgery can fix it, we're good!

Wow, how life changes after watching your children fight for their life!

I'm also very thankful for
-My parents, especially my mommy, she is the best mom in the world. I would have gone crazy many nights without her.
-The Amy Harris Fund that has allowed our twins to recieve their RSV shots this winter.
-Justin's parents, who are always there when we need them.
-the friends I have met in the NICU
-my neices and nephew
-the wonderful kids on my CC team, who make coaching worth it.

Christmas Card

I'm asking for your advice...Which photo would be the best Christmas card???

 

Another round of Synagis today. That $6000 qonder drug. The makers must be making a killing. They help save our babies but then they make us broke. Go figure!
Hallie now weighs 17lbs 10oz. YAY, the nurse said she gained a half pound this month. Heath was 22lbs 8oz.

Both babies seem to be progressing great. The ECI worker told me that "heath is SO smart" which was great to hear.... but im still wondering how she got that since he doesnt communicate!
 

HWEEN

Hallie is a little fairy, notice the cute shoes I just got her!! Heath is a tiger with glasses! Even though it doesnt look like he is getting much use out of them since he is looking over the glasses to see. Harley, of course, is the Shrek! The twins are getting their rounds of RSV shots Oct- March and we just got their first bill in....The shots were over 6000 a piece for ONE month. I wasnt informed that when they weigh a certain amount they use more dosage and the $$ amount doubles. Thank God for insurance or our little two would be having to go without them. At our last appointment Hallie weight 17lbs 7oz and Heath was over 22lbs. Both have broke through a lot more teeth lately...considering that Hallie just had one... anything is a lot but she now has FIVE... Heath has 7 and almost 8... Hallie and Heath both got 4 in a weeks time!
While he was throwing his daily tantrum at daycare, Heath broke his glasses. We had to call and get him a new pair. Besides all that, there is nothing new.

 

Just a few cute pictures!